LPH47: Finding a Voice with Lori Rogers on Autism and Spelling to Communicate
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How might growing up with a sister with autism shape your life?
In this episode, you’ll hear a powerful look at profound autism, caregiving, and family as Dr. DeShanna Reed shares her experience as the youngest sibling to Adrian. She explains how finding the right care and community shaped their journey and what it felt like when Adrian moved into a group home. Dr. Reed also talks about the caregivers who became “found family” and the tender moment her family had to explain that their dad was gone.
She shares how stepping into the caregiver role as an adult changed her life and why she is creating a book for siblings to help them navigate the legal, financial, and emotional parts of caregiving. If you support a loved one with IDD, this conversation will help you feel seen and supported.
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What if curiosity mattered more than judgment in parenting?
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What is it really like to raise a child with profound autism who needs 24/7 support?
This episode explores profound autism, caregiving, and the real challenges families face every day. Guest Ben Duff shares his family’s honest and powerful story.
Ben talks about the early signs they noticed, the emotional process of getting a diagnosis, and the daily work of managing medications, therapy, and changing behaviors through different stages of life. He also opens up about moments of crisis, hard care decisions, residential program options, and the ongoing need to advocate within a complex system.
Ben offers simple and practical guidance for families just starting this journey. He shares how to build a strong support network, find resources that fit your child, and define what “success” means for your own family. This episode gives parents, caregivers, and anyone curious a clear and heartfelt look at the resilience involved in raising a child with profound autism.
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What happens when the services your child needs don’t exist yet?
Judi Uttal faced that challenge when her son Josh was diagnosed with autism at age four. She reflects on the early challenges, including the lack of autism awareness and resources in the 1990s, and how her early advocacy, community support—including a pilot program in Irvine and later the Orange County Asperger Support Group—and determination helped Josh thrive in film production.
Judi now runs the Orange County Asperger Support Group, helping teens and adults with level one autism improve their quality of life. She also founded the Autism in Entertainment (AIE) Workgroup, a California-based initiative that increases employment opportunities for individuals on the autism spectrum in animation, film, and gaming. Through conferences, creator community meetings, and career resources, AIE connects autistic individuals with opportunities in the entertainment industry.
Listen to her fascinating story!
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What’s it really like raising two kids on totally different parts of the autism spectrum, especially when you’re on the spectrum yourself?
In this episode of Let’s Plant Houses, Wendy Ernzen chats with Eileen Lamb, a mom, author, photographer, and all-around autism advocate who knows the ups and downs firsthand. Eileen shares stories about her oldest, Charlie, who has profound autism, and her younger son Jude, who has level 1 autism. From the early diagnosis days to battling for the right school and figuring out what actually works, she’s got plenty of honest, real talk about what parenting looks like in her world.
Eileen is the founder of The Autism Cafe blog, author of All Across The Spectrum and Be The One, and the Senior Director of Social Media and Marketing at Autism Speaks. She’s also a podcast host and photographer based in Austin, Texas, where she juggles life with children. Whether you’re a parent, a teacher, or just curious, this episode is packed with practical insights and relatable moments.
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What would you do if the medicine that saved your child’s life was still considered illegal by the federal government?
In this episode of Let’s Plant Houses, I talk with Michelle Wright, a mother and advocate whose adult son Ian has profound autism. Michelle shares how medical cannabis changed everything for her family, easing Ian’s symptoms and improving his quality of life after decades of struggle.
But while some states allow its use, federal law still stands in the way of research, access, and Ian’s ability to live more independently. Michelle shares why she’s speaking out and how she’s working to legalize medical cannabis for everyone who needs it.
Listen to her powerful story of hope, advocacy, and change.
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