LPH49: Clay Boatright talks autism parenting, faith and why happiness is a choice
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What if the biggest fight your family ever faced was simply proving that your sister with Down syndrome should have the life she wants?
In this episode of Let’s Plant Houses, host Wendy Ernzen talks with Franke James about Down syndrome, disability advocacy, and how real disability rights can start at home. Frankie shares the powerful story of her sister Teresa, a joyful artist and author with Down syndrome, and how their family learned early to include her fully, build her strengths, and expect more from the world around her.
You’ll hear what went wrong when her siblings tried to place Teresa in long-term care, even though Franke was willing to give her the life she wanted and deserved. Hear about how Franke and her husband fought back using a capacity assessment, power of attorney, and supported decision making so Teresa could choose where and how she lives, the foundation of Franke’s award-winning book Freeing Teresa. Franke also gives us a sneak peek of the sequel Escape to Lotus Land, the next chapter in Teresa’s beautiful life. This conversation is for parents, siblings, and professionals in the IDD community who want hope, practical insight, and a reminder to presume competence.
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How might growing up with a sister with autism shape your life?
In this episode, you’ll hear a powerful look at profound autism, caregiving, and family as Dr. DeShanna Reed shares her experience as the youngest sibling to Adrian. She explains how finding the right care and community shaped their journey and what it felt like when Adrian moved into a group home. Dr. Reed also talks about the caregivers who became “found family” and the tender moment her family had to explain that their dad was gone.
She shares how stepping into the caregiver role as an adult changed her life and why she is creating a book for siblings to help them navigate the legal, financial, and emotional parts of caregiving. If you support a loved one with IDD, this conversation will help you feel seen and supported.
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What if curiosity mattered more than judgment in parenting?
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What is it really like to raise a child with profound autism who needs 24/7 support?
This episode explores profound autism, caregiving, and the real challenges families face every day. Guest Ben Duff shares his family’s honest and powerful story.
Ben talks about the early signs they noticed, the emotional process of getting a diagnosis, and the daily work of managing medications, therapy, and changing behaviors through different stages of life. He also opens up about moments of crisis, hard care decisions, residential program options, and the ongoing need to advocate within a complex system.
Ben offers simple and practical guidance for families just starting this journey. He shares how to build a strong support network, find resources that fit your child, and define what “success” means for your own family. This episode gives parents, caregivers, and anyone curious a clear and heartfelt look at the resilience involved in raising a child with profound autism.
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What happens when the services your child needs don’t exist yet?
Judi Uttal faced that challenge when her son Josh was diagnosed with autism at age four. She reflects on the early challenges, including the lack of autism awareness and resources in the 1990s, and how her early advocacy, community support—including a pilot program in Irvine and later the Orange County Asperger Support Group—and determination helped Josh thrive in film production.
Judi now runs the Orange County Asperger Support Group, helping teens and adults with level one autism improve their quality of life. She also founded the Autism in Entertainment (AIE) Workgroup, a California-based initiative that increases employment opportunities for individuals on the autism spectrum in animation, film, and gaming. Through conferences, creator community meetings, and career resources, AIE connects autistic individuals with opportunities in the entertainment industry.
Listen to her fascinating story!
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